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I have myelodysplastic syndrome.

I can beat this rare bone marrow disease with your support, which I need.

Official IHaveMDS.com Blog Our Message Board The Guestbook Donations

      Welcome to my website. I am/was a new construction plumbing project manager. April 10, 2008 I was admitted to the hospital, thinking I was just short of breath. I later found out it was MDS.  A disesase that affects the bone marrow. Most of the days I am short of breath and tired. I do not talk much on the phone because it wears me out. I set up this site to gather more information on this life threatening affliction & keep family and friends updated as to my progress through this ordeal.

     I have made a few changes to the site here are some of the major changes.

My Official Blog : Will be updated as much as possible. Here is where you can read the thoughts I have on this disease as well as life in general. You can now subscribe by entering your email adress in the "Subscribe" box. You will be emailed each time I update the blog.
Our Message Board : I want to set up an open air forum for questions & answers on various health and living issues. Everyone is welcome to participate.
The Guestbook : Let me know you are reading this. I check this daily, and I can not tell you how much it means to see new notes.
Donations : This is the most humbling part of the site. I am unable to work, so there are no wages incoming but the expenses continue to arrive.
eMail & Text : You can reach me by email at txplumber@gmail.com , Yahoo messenger rctxplumber or SMS text (786) 281-8316.

     I will continue to make changes and welcome suggestions.

Thanks for stopping by,
Roger

I would like to thank the staff of Tomball Regional Medical Center for the compassionate attention they showed me over the last week while I was a patient on the 3rd floor.
Hospital stays are tough enough, it makes a difference when you are cared for by a staff that works as a team in providing what is best for the patient. My nurses and doctors were great. I hope we stay in touch through this website. I really like ya'll, but..I am no hurry to go back.
Thanks for being there,
Jenni, Lisa P., Appolonia, Michelle, Tetra
Again, I thank you all.

Links to valuable sites

National Marrow Donor Program
The Bone Marrow Foundation
National Bone Marrow Transplant Link
Blood & Marrow Transplant Resources

The start of a new month, a new season brings renewed hope. I am going into my sixth month with this contaminated bone marrow. I would like to be on a surgery table by the end of the month. A bone marrow transplant has a success rate of 80 percent, not exactly a sure thing but it is better than progressing to the next stage. Leukemia.

My family and friends have really begun to pull together to see me through this. I am trying to reach out to the media. Today I recieved a donation and note from someone I had never met. I would like to share it here.

Hi Roger,
I had a read of your website tonight (found it through mds-foundation.org). You sir, are a source of inspiration to us all. I just wanted to say hang in there man, you gotta keep going with this stuff.
I've made a small donation to your site. It is prohibitive (cost wise) for you to send the bracelet to the UK. Can I ask that maybe you give one to one of your friends/daughters friends or someone on my behalf?

Thanks
Take care & prayers that you get well,
Don
Seven Oak, Kent United Kingdom

In an effort to raise funds to assist with mounting expenses, as well as heighten awareness of this rare disease we are offering a keepsake bracelet. It is maroon in color and inscribed with a ribbon and the text, www.IHaveMDS.com. We will offer them online and at various locations for only $5.00. Thank you again for your continued support.